image description

For Epilepsy

Did you know that epilepsy is more common than muliple sclerosis, Parkinson's disease, muscular dystrophy and cerebral palsy combined?  It is estimated that one in twenty six people will be affected by epilepsy in their lifetime.  200,000 new cases of epilepsy are diagnosed each year, yet seizures are uncontrolled or only partially controlled in up to 40% of patients.  Sudden Unexplained Death in Epilepsy (SUDEP) accounts for 34% of all sudden deaths in children.

Still, epilepsy is largely misunderstood and funding for research to find a cure for epilepsy lags significantly behind other neurologic disorders.  

I have spent all of my professional life with one foot in both worlds, trying to resolve my academic understanding of seizures with the daily reality of medications and uncertainty.  My blog, One in Twenty Six, is designed to decrease the stigma associated with epilepsy by sharing the stories of people affected by epilepsy.  It is my sincere hope that by raising awareness and decreasing the stigma associated with seizures and epilepsy, we can inspire others and each other to donate toward research to find a cure for this dreaded disease.

In January 2014, an article I wrote about living as a professional with epilepsy was published in Epilepsia, the International Journal of the League Against Epilepsy.  You can view that article here: http://onlinelibrary.wiley.com/doi/10.1111/epi.12501/full

Please also see the related links below for groups working to raise awareness and support research to find a cure for epilepsy.